Friday, February 27, 2009
Thursday, February 26, 2009
p.s. Know of any other recent articles on cancer and fertility? Let us know.
Wednesday, February 25, 2009
p.s. They are available in Harper (pink), Jordan (green) and William (blue).
Tuesday, February 24, 2009
Monday, February 23, 2009
- $10 billion to the National Institutes of Health (NIH) for biomedical research in areas such as cancer and stem cells (including at least $1.2 billion for cancer research).
- $1 billion to the Centers for Disease Control and Prevention (CDC) for prevention and wellness programs including cancer screening and education programs and, maybe, infertility (if we can get it recognized by the CDC as a disease!).
- 65% federal subsidy for COBRA health insurance premiums for up to nine months for workers who lose their jobs from September 1, 2008 through December 31, 2009.
- $19 billion for a national health information technology system to support electronic medical records in hopes of lowering medical costs and improving quality of care (which would also greatly help with improved informed consent around cancer-related infertility).
I would love to know more. Anyone have any additional knowledge, insight or opinions as to how this will affect the cancer and/or fertility communities?
Friday, February 20, 2009
Thursday, February 19, 2009
Fertile Hope sent out a request to corporate donors asking them to support us just because – just because we are a great organization, we spend your donations wisely, the long-term benefit of your support will benefit your business, we’ve proven time and again that we are effectively meeting people’s needs and growing the market, etc, etc, etc. The return rate was dismal. Coincidentally, two months later, we sent out a request to the same companies asking them to support us in a way that also promotes them. The return rate was phenomenal - companies were literally fighting for limited placements and begging to be included! Lesson learned.
Now the key is to continue to come up with creative ways to meet the cancer community’s needs in ways that also have big benefits for our funders. Any ideas?
Wednesday, February 18, 2009
Today, I was in a great meeting brainstorming with a diverse group of leaders from the reproductive community. The meat of our conversation was how to change this – specifically, how the entire reproductive community can work together to increase awareness and improve access.
I truly believe that we can achieve more together than we can alone, which is why meetings like this get me very fired up. The key is to make sure that the conversation doesn’t stop with the meeting. So, while we all digest all of the ideas discussed and before we move forward with any new programs, I want to solicit your advice. How do you want to see us remove the infertility stigma and increase access to treatments?
Tuesday, February 17, 2009
“Just found out... My ovaries are d-e-a-d, dead. Thanks to you, I have those seven frozen eggs, hope, and no regrets.”
Needless to say, Fertile Hope’s work is important and I am here to stay. Check out more inspirational stories or share yours. We all need to stay inspired, right?!
Friday, February 13, 2009
Thursday, February 12, 2009
Wednesday, February 11, 2009
Tuesday, February 10, 2009
“Psi Bands (pronounced "Sigh Bands") are acupressure wrist bands for the relief of nausea due to morning sickness (pregnancy), motion sickness/ travel, chemotherapy, and anesthesia. Unlike any product on the market, Psi Bands are: Drug-free, Adjustable, Comfortable, Fashionable, Waterproof, Reusable, and Affordable. FDA-cleared Psi Bands are a stylish alternative for those who suffer from nausea."
Fertile Hope received samples in advance of an introductory call we were scheduled to have with the founders, so we happened to have a few sets laying around the office one morning when I was green. I tried them on and, voila, they worked like magic! I was in love – and so is the media. They’ve been featured in FitPregnancy, SELF, O, The Oprah Magazine and more! Even better, $1/band from the sale of the Cherry Blossom band is donated to Fertile Hope. Watch ShopNBC tomorrow, Wednesday, February 11, at 2 AM, 7 AM, or 4 PM (CST) for a great deal – or buy them anytime at drugstore.com.
Ever tried them? Tell us what you think…
Monday, February 9, 2009
Breast cancer patients and survivors (and the healthcare professionals who treat you), please tell us what you think...
What does this mean for you or your patients? Any success stories to share?
Friday, February 6, 2009
- How many eggs do I need to freeze to have a baby?
- Which egg freezing technique should I use – slow freezing or fast freezing (vitrification)?
- Will my baby be healthy?
The trial is only as good as the number of people who participate – the more the better. Participating is a cinch. You don’t have to do anything. Your reproductive doctor just signs you up and then anonymously shares your data with the trial. So, if you or anyone you know is using their frozen eggs, ask your fertility doctor to sign you up. What do you think – would you participate?
Do you worry about a risk of cancer from fertility drugs?
Thursday, February 5, 2009
I called my hero to ask her – how do you do it? My hero happens to be the woman who saved my life (twice!), Dr. Nancy Snyderman, and as if that’s not enough to make a superhero, she always seemed to have it all – and it all under control. I wanted - no needed - her secret!
I told her that I was struggling to balance work, motherhood, friendship, romance, travel, and everything else on my to-do list. I fought so hard for this life, but now I am struggling to keep up with it. Her secret shocked me. “Forget balance!” she said. If balance is the goal you will constantly fail. Give it up. You can't be great at everything everyday. But, she said, you can have it all!
Do you agree? What’s more important to you - balance or having it all? Do you feel like you have either?
Wednesday, February 4, 2009
What changed? A lot. My job is to do what is best for our users. Patients and survivors keep telling us that they want more information, more customization, more, more, more. They want it easier, faster and all for free. We used to be able to meet these needs through big corporate grants, but the landscape of fundraising is changing and those grants are not as easy to come by. So, we had to get creative. Can we tie meeting a patient need with a diversified, sustainable revenue stream?
We checked out the market to see how others do it. What is WebMD’s revenue model? Ad sales. BabyCenter? Ad sales. What do you think? Take our poll. Does this take away from the credibility of the information we provide? Would you rather have no ads and no information or ads and the information and tools you need? Would you rather pay for the information yourself? While we wait to hear the verdict – please buy your ads!
Tuesday, February 3, 2009
I used to meet with the leaders of large cancer centers around the country and hear the same thing, time and time again - patients don’t think fertility is important; more complete informed consent isn't necessary (e.g., it was ok to sterilize patients without their full knowledge!), etc. Really they were saying that it shouldn’t be discussed with everyone (as shown in studies, this generally meant poor patients, gay patients or very sick patients).
Now, a few short years later, these subjective judgments are being challenged - one of the biggest cancer centers in the world is promoting improved cancer-related fertility care as the reason to get treated there. Wow! We’ve come a long way. . .
p.s. The woman featured in the ad is a cervical cancer survivor who underwent a fertility-sparing surgery at MSKCC. We salute Fertile Hope’s Medical Advisory Board member, Dr. Yukio Sonoda, who worked along with Dr. Nadeem Abu-Rustum to help bring this procedure to the US from France and make it available to MSKCC patients.